Living in Death's Shadow: Family Experiences of Terminal Care and Irreplaceable Loss

Living in Death's Shadow: Family Experiences of Terminal Care and Irreplaceable Loss

by Emily K. Abel


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What is it like to live with—and love—someone whose death, while delayed, is nevertheless foretold? In Living in Death’s Shadow, Emily K. Abel, an expert on the history of death and dying, examines memoirs written between 1965 and 2014 by family members of people who died from chronic disease. In earlier eras, death generally occurred quickly from acute illnesses, but as chronic disease became the major cause of mortality, many people continued to live with terminal diagnoses for months and even years. Illuminating the excruciatingly painful experience of coping with a family member’s extended fatal illness, Abel analyzes the political, personal, cultural, and medical dimensions of these struggles.

The book focuses on three significant developments that transformed the experiences of those dying and their intimates: the passage of Medicare and Medicaid, the growing use of high-tech treatments at the end of life, and the rise of a movement to humanize the care of dying people. It questions the exalted value placed on acceptance of mortality as well as the notion that it is always better to die at home than in an institution. Ultimately, Living in Death’s Shadow emphasizes the need to shift attention from the drama of death to the entire course of a serious chronic disease.

The chapters follow a common narrative of life-threatening disease: learning the diagnosis; deciding whether to enroll in a clinical trial; acknowledging or struggling against the limits of medicine; receiving care at home and in a hospital or nursing home; and obtaining palliative and hospice care. Living in Death’s Shadow is essential reading for everyone seeking to understand what it means to live with someone suffering from a chronic, fatal condition, including cancer, AIDS, Alzheimer’s, and heart disease.

Product Details

ISBN-13: 9781421421841
Publisher: Johns Hopkins University Press
Publication date: 02/28/2017
Pages: 184
Product dimensions: 5.90(w) x 9.00(h) x 0.80(d)
Age Range: 18 Years

About the Author

Emily K. Abel is professor emerita at the UCLA–Fielding School of Public Health. She is the author of many books, including Hearts of Wisdom: American Women Caring for Kin, 1850–1940 and The Inevitable Hour: A History of Caring for Dying People in America.

Table of Contents

Introduction 1

1 "The Human Touch": Defining the Good Doctor 11

2 "Hope Became a Companion in Our Home": Enrolling in Clinical Trials 27

3 When Medicine Fails 54

4 Caring by Kin: Preventing Stress and Preserving Dignity 75

5 The Shadow Workforce in Hospitals and Nursing Homes 97

6 The Evolution of Hospice Care: Transforming the Role of Kin 117

Conclusion 134

Acknowledgments 139

Notes 141

Index 167

What People are Saying About This

Patricia D'Antonio

Written by one of the foremost historians of family caregiving, illness trajectories, and death and dying, this is an incredibly insightful and important book that will remind a wide range of readers that dying is a long, emotional process for many families. I applaud Abel's conclusion that we as a society can no longer ignore the process of living while dying.

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