The book focuses on three significant developments that transformed the experiences of those dying and their intimates: the passage of Medicare and Medicaid, the growing use of high-tech treatments at the end of life, and the rise of a movement to humanize the care of dying people. It questions the exalted value placed on acceptance of mortality as well as the notion that it is always better to die at home than in an institution. Ultimately, Living in Death’s Shadow emphasizes the need to shift attention from the drama of death to the entire course of a serious chronic disease.
The chapters follow a common narrative of life-threatening disease: learning the diagnosis; deciding whether to enroll in a clinical trial; acknowledging or struggling against the limits of medicine; receiving care at home and in a hospital or nursing home; and obtaining palliative and hospice care. Living in Death’s Shadow is essential reading for everyone seeking to understand what it means to live with someone suffering from a chronic, fatal condition, including cancer, AIDS, Alzheimer’s, and heart disease.
|Publisher:||Johns Hopkins University Press|
|Product dimensions:||5.90(w) x 9.00(h) x 0.80(d)|
|Age Range:||18 Years|
About the Author
Table of Contents
1 "The Human Touch": Defining the Good Doctor 11
2 "Hope Became a Companion in Our Home": Enrolling in Clinical Trials 27
3 When Medicine Fails 54
4 Caring by Kin: Preventing Stress and Preserving Dignity 75
5 The Shadow Workforce in Hospitals and Nursing Homes 97
6 The Evolution of Hospice Care: Transforming the Role of Kin 117
What People are Saying About This
Written by one of the foremost historians of family caregiving, illness trajectories, and death and dying, this is an incredibly insightful and important book that will remind a wide range of readers that dying is a long, emotional process for many families. I applaud Abel's conclusion that we as a society can no longer ignore the process of living while dying.